Speaker:
Jordan Sam, MHSc - Genomics Research Data Scientist, St. Michael's Hospital, National Indirect Impacts Study.
Session Overview:
For those living with a hereditary cancer risk, such as carrying a BRCA mutation, the challenges extend beyond health concerns. This session, led by Jordan Sam, an expert in genomics research, will explore the financial, practical, and legal aspects of managing hereditary cancer risk.
Jordan will share findings from the Canada-wide National Indirect Impacts Study, which looks at the hidden costs of living with hereditary cancer risks. These include out-of-pocket expenses, travel costs for medical care, and the impact on work and income. He will also discuss the Genetic Non-Discrimination Act (GNA) and how it protects against genetic discrimination, a crucial concern for many BRCA carriers. You'll learn about your rights under this law and how to navigate potential issues related to genetic testing and insurance.
Key Topics:
Understanding the Costs: An overview of the different financial burdens that come with hereditary cancer risk, including medical, travel, and insurance-related expenses.
Managing Financial and Practical Challenges: Practical tips and resources to help you handle these costs and other day-to-day challenges.
Genetic Non-Discrimination Act: Learn about the GNA, which protects you from being discriminated against based on your genetic information and understand your rights.
Dealing with Genetic Discrimination: Explore common concerns about genetic discrimination and how to protect yourself.
Q&A: Get your questions answered and receive tailored advice for your situation.
You can register here